Please Sign our Guestbook below
You have a wonderful website so full of information about the disease. I am currently doing a childcare course and have choosen to do a project on Batten Disease. Up to this I didnt know to much about it other than having played a very small roll in supporting the events held locally. I hope I can be of some small assistance in making people understand the disease and how important it to support events to with the disease no matter how small.Wishing you all the best in the future.
tony and mary web site is brillant , ye are the best parents a child could wish for :) xx
Thank you for creating this site in order to help others through difficult times and create awareness of Battens disease.
O my God the new website is brilliant it is unreal I LOVE IT!! x
I can't believe the outstanding work that you are doing. You are an inspiration to all. I wish you all the best and will show my continued support where I can.
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Thank you all for taking the time to help us along this journey. We greatly appreciate it. Without you we could not do the work that we do. I am forever grateful.
- Tony Heffernan Bee for Battens