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Much gratitude for this website as we fight closer to the cure for Battens.
I feel for you all. I understand out difficult things like this are. It effects the whole family right down the line and this is something that not a lot of people understand. From now on when I say a prayer for our Ben I shall also say a prayer for your two beutiful Children too. God will look after your Saoirse until you are all reunited. God Bless. XoX Nichola Power - www.letsdoitforben.com
Lookin Good! Lookin Good! Have fun in NY.Make sure you feed the pigons. Westley wanted to know. Have a safe trip home.
Hi Mary and Tony. Delighted with Liam's progress..
Heard Tony on the last word it was the most moving interview I've ever heard. My prayers are with Liam and both of you
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Thank you all for taking the time to help us along this journey. We greatly appreciate it. Without you we could not do the work that we do. I am forever grateful.
- Tony Heffernan Bee for Battens