The Buzz Blog - Events

PostedApr22

Abbey's Army Antics

Posted by Bee For Battens in Events | 0 comments

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Please support Abbey McGuinness and the fight against Batten's Disease.

Abbey's Army Antics will take place on Saturday, 30 April at 8.30pm in the Greenhills Community Centre. It promises to be a great night for all the family.

The upcoming Irish band Wairwe Land and friends including singers Laura and Sarah Craine, Ir

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PostedAug29

Volunteers Wanted

Posted by Bee For Battens in Events | 0 comments

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Bee For Battens is the National Charity For Batten Disease in Ireland, a part of the Saoirse Foundation, a registered non-profit charity in Ireland, based in Co. Kerry.

 

The charity operates throughout Ireland, helping families North & South of the Border.

We are always developing our charity to further our goals and make a

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PostedJun05

Kerry Set To Buzz For World Battens Day 2014

Posted by Michelle Daly Hayes in Events | 0 comments

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Bee For Battens and The Saoirse Foundation will celebrate the 4thAnnual World Battens Day with a family fun extravaganza at The Kerry Way Killarney, from 12pm to 6pm on Saturday 7thJune 2014. 

Why not bring the whole family along for a great day of fun, entertainment and prizes galore?. Our World Battens Day celebrations will kick

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PostedJun01

Kerry Set To Buzz For World Battens Day 2014

Posted by Michelle Daly Hayes in Events | 0 comments

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Killarney, June 1st 2014, The Saoirse Foundation and Bee For Battens.org will celebrate the 4th Annual World Battens Day with a family fun extravaganza at The Kerry Way Killarney, from 12pm to 6pm on Saturday 7th June 2014.

Why not bring the whole family along for a great day of fun, entertainment and prizes galore?. Our World Battens Day ce

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PostedMay13

Join Our Rare Diseases Study With TCD

Posted by Michelle Daly Hayes in Events | 0 comments

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The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study).

All parents and guardians are invited

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PostedDec07

Get Your Hands on Imelda May's Guitar!

Posted by Bee For Battens in Events | 0 comments

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Bee for Battens to Strum up Funds thanks to Bord Gáis Energy and Imelda May!

Bee for Battens, an Irish charity established to help families of children diagnosed with Battens disease, is the winner of a Bord Gáis Energy competition which invited Facebook followers to nominate a charity to win a signed guitar belonging to Irish

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PostedNov01

OSLO SANTA SKI RUN 2013

Posted by Bee For Battens in Events | 0 comments

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It's Back !

2013 see's the welcome return of the Oslo Santa Ski Run which will be held at the Oslo Vinterpark, on Saturday 14th December.

The event will hopefully be opened by the Irish Ambassador to Norway, and we are very grateful for the support of Oslo GAA & the Norwegian Irish Society who are backing this unique eve

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PostedAug16

New B4B GAA Jersey!

Posted by Bee For Battens in Events | 0 comments

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Bee For Battens are delighted to announce the launch of their new Oslo GAA training kit.

 

The new jersey, which is modelled here by multi All Ireland winning  Colm "the Gooch" Cooper Kerry Senior Football Captain & Ladies Captain Bernie Breen. The charity also has the original jerseys, which we launched last

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PostedMay05

World Battens Day June 1st 2013

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World Battens Day is Back  & With Free Admission Yet Again!

This Year Ireland will mark its 4th official World Battens Disease Awareness Day is a very special way. This years event is being held at The Kerry Way Killarney, (from 12.00 : 19:00)


Entry is free for all the family. The event will feature lots of live bands includi

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PostedFeb28

Official 2012 All Ireland Match Football Auction!

Posted by Bee For Battens in Events | 1 comments

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UPDATE : 03/03/13 current bid $1500

This is the actual 2012 All Ireland Football from the final between the Donegal and Mayo. This is a Unique piece of GAA history and it has been signed by the enitre Donegal Squad. This Ball was donated to us by the president of the GAA Liam O Neill and will be auctioned off to the highest bidder. The money

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PostedFeb27

DAA 2013 Charity of The Year Launch

Posted by Bee for Battens in Events | 0 comments

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There was a great buzz in Dublin Airport this week at the launch of the 2013 chariity of the year as Kewin Towland , new CEO of the DAA made the formal announcement.


We are Absolutely Thrilled to be Named as the Principal Charity for 2013 for the DAA airports throughout Ireland. In total 3 charities were chosen, with Make A Wish & Do

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PostedDec13

Killarney Buzzing About New Marathon

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The Town of Killarney is buzzing with excitement this week with the announcement of the first full distance marathon to be held in the town on the 20th July 2013. With a half marathon and a 10K race on the same day this will be one date eagerly anticipated by all running enthusiasts. A fast downhill course with amazing scenery is certainly a com

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PostedDec12

Christmas Raffle, Name that Tune Music Night

Posted by Bee for Battens in Events | 0 comments

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Enter our Christmas Raffle and win tickets to see Pat Shortt at the INEC, a luxury hotel break, Oslo GAA Bee for Battens Jersey,plus many other goodies!!! Just email your Name, Address and contact number to info@beeforbattens.org and put subject as Raffle Tickets. Payment can made via our website  http://www.beeforbattens.org/don

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PostedNov29

Santa Sleigh Ride supports Bee for Battens

Posted by Bee for Battens in Events | 0 comments

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We would like to thank Santa Sleigh Ride in Blanchardstown Dublin, for supporting Bee for Battens, Its a fantastic idea where children (and adults) sit in a sleigh and can get a dvd of them travelling to Lapland and meeting THE SANTA CLAUS!!!! Donations can be made at Santa Sleigh Ride for Bee for Battens. Im getting that christmassy feeling!!!!

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PostedNov15

Bee The Book On Sale Now!

Posted by Bee For Battens in Events | 0 comments

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Want to Get A Fantastic Book For Your Child This Christmas

BEE THE BOOK : FARM FRIENDS

Bee The Book : Farm Friends is a novel and interactive approach to storytelling . Based on a new innovative design this book allows the reader to become the characters in it.




 Look through the hole and read the rhyme on the flap

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PostedSep03

Humpty Dumpty Duathlon, Kenmare Sat Oct 27th

Posted by Bee for Battens in Events | 0 comments

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Its Back Again This October 27th

Kenmare town is fast gaining a reputation as Ireland’s fittest town. On the October weekend, Saturday Oct 27th Kenmare will host its third duathalon, a 40km Cycle and a 6km Run. It is open to everyone, individuals and relay teams. Funds raised from the event will be donated to BEE FOR BATTENS (main char

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PostedJul26

Another April Day Therese Mc cartin

Posted by Mai in Events | 0 comments

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Renowned pianist, Therese McCartin, is bringing her musical career on a new journey with her latest recording, Another April Day. The Artist is donating a proportion of all sales to charity, namely Bee for Battens, The Saoirse Foundation. Described as “easy listening” the finished album is both beautiful and moving in equal meas

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PostedJul26

KDMC Autocross : Farranfore

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The Jimmy Devane Memorial Killarney & District Motor Club Grass Surface Autocross will take place on Sunday 5th August 2012. The venue is in Farranfore, Killarney, Co-Kerry and will be sign posted on the day from Farranfore Village. Last year was the first running of the event under its current name The Jimmy Devane Memorial Autocross. Jimmy

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PostedJul26

Cork City Mini Marathon

Posted by Bee For Battens in Events | 0 comments

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A lovely bunch of ladies will be taking part in the Evening Echo Cork Mini Marathon this sept 16th for Bee for Battens. We wish to extend our thanks and best wishes to you. Up to 10,500 registered last year! This year is expected to be even bigger, so if you wish to get involved then let me know and I will send you a Bee For Battens T Shirt and

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APFS Harriers 5k fun run in aid of Bee for Battens & Barretstown at Dublin Airport
On August 26th join us for a charity 5km fun run at 12pm. All proceeds will be split equally between Bee for Battens and Barretstown, two great charities! The route will be a flat 5km road surface. Free parking available at the Boot Inn at the back of Dublin

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PostedJun21

Skydive Saturday 23rd June 2012

Posted by Mai in Events | 0 comments

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Veronika Nika Chapkova

 

Hi everyone, i am doing skydiving saturday for Bee For Battens...is there any chance that i can get 1 of yours bee for battens t-shirt so i could wear it on my day of jump...?? thanks..
any1 neer Sligo are more then welcome to come :)

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PostedJun21

Alcatraz Swim 26th August 2012

Posted by Mai in Events | 0 comments

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Julian O'Mahony  is working and living in the USA.
He works for Intel and he got an opportunity to go to the USA last year.
He will be over there for 2 years.
He phoned me at the week end because he is signed up to the Alcatraz
Swim on 26th August 2012.
He is doing it solo and would like to fund raise for Bee for
Battens/The

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A brilliant evening expected to be had by locals and visitors alike at the wonderful Carnige Arts Centre Kenmare on the 11th August 2012 at 8pm till late! Trad session for all you music lovers! Always a big favourite in Ireland and the beautiful town of Kenmare in Co. Kerry. All welcome :) See you there..

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PostedJun10

1st Irish Rare Disease Plan, Consultation

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Consultation on a National Rare Disease Plan


The Department of Health is currently developing the first National Rare Disease Plan for Ireland. This plan will make recommendations for enhancing the quality of life of people experiencing rare diseases. The plan will cover aspects of research, diagnosis, treatment and patient empowerment.

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PostedJun07

Madhatters Tea Party

Posted by Bee For Battens in Events | 0 comments

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The Angsana Madhatters Tea Party

At The Brehon, Killarney

Saturday, June 9

 

It’s time to dust off those hat boxes and don your favourite headpiece for The Angsana Madhatters Tea Party which takes place in The Brehon, Killarney on Saturday, June 9.

Tickets cost just €15 and all proceeds will be donated to Bee

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PostedApr15

3rd Annual World Battens Free Family FunDay

Posted by Bee For Battens in Events | 0 comments

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Our Way of Saying Thanks to thise who support us!

 

This Year Ireland will mark our 3rd Annual World Battens Disease Awareness Day is a very special way. This years event is being held yet again at The Kerry Way Killarney, (from 12.00 : 19:00)

We had over 2000 people enjoy the event last year, from new born babies

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PostedMar29

Easter Eggs-travaganza

Posted by bee For Battens in Events | 0 comments

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Easter Eggs-travaganza@ the Killarney Outlook Centre

In aid of Bee for Battens

Saturday 7th April

12pm – 6pm

 

Celebrities will be in an abundance on Easter Saturday 7th April, at the Killarney Outlet Centre when it hosts a ‘Beat the Celebrity’ cycle race as part of a variety of f

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PostedFeb22

Flora Mini Marathon Registration Open

Posted by Bee For Battens in Events | 1 comments

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Bee For Battens is delighted to be associated with this years event yet again and we hope to build on previous years successes.

This the 30th year of the Flora Women's Mini Marathon. This year's event will take place on Bank Holiday Monday 4th June 2012, which is what would have been Saoirse Heffernan'

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PostedFeb21

A Taste Of Kenmare

Posted by Bee For Battens in Events | 0 comments

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March 23rd will see a unique event taking place in Kenmare, four of Kenmare's finest Chefs will come together to host a wonderful dining experience highlighting their unique cooking talents at Sheen Falls Lodge to launch the upcoming Kenmare Food Carnival July 13-15th 2012 and also support Jack and Jill Foundation and Bee for Battens.

Th

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PostedFeb16

Johnny Cash , Walk The Line INEC

Posted by Bee For Battens in Events | 0 comments

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Bee for Battens is delighted to announce a new alliance with Killarney's INEC complex and to start this new initiative, we are pleased to announce that all profits from the upcoming " Walk The Line" Tribute with go directly to Bee For Battens.

Join Us For A Special Evening to Celebrate what would have Been Johnny's Cash'

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PostedJan18

2012 Killarney Women's Marathon Sept 10th

Posted by Bee For Battens in Events | 0 comments

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Killarney Women's Mini Marathon is a 10k event through Killarney National Park. So we are looking for people to Walk Run or Jog for Bee For Battens. A timing chip will also be available for you to register your run Time

 

The Course Route will take you through the magnificent Killarney National Park a

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PostedNov18

Signed Dublin Jersey : Blind Auction

Posted by Bee For Battens in Events | 0 comments

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For All Dublin GAA fans!,here is our charity fundraiser!

After Dublin becoming the All Ireland Football Champions for 2011, we have an opportunity for you to own a piece of history, 

a Framed and signed football Jersey! this Jersey was donated to us by Irish Comedy Legend, PJ Gallagher, we are offering this special piece of GAA hi

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PostedNov16

Summer School a Huge Success

Posted by Bee For Battens in Events | 0 comments

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Report from Alan Bates of Bee For Battens regarding this years Summer School part sponsored by "Bee For Battens"

The ‘Foyle Parents and Friends Association’ has been supporting individuals with physical and learning disabilities as well as their parents and carers since 1963!  For the past 4 years however they have

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PostedNov01

A Fox For A Fiver? Win a New Car!

Posted by Bee For FiverBattens in Events | 0 comments

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Bee For Battens in association with VW Ireland & Tom Harvey Motors are offering you the chance to win a 2011 brand NEW VW Fox for just a fiver!

To enter all you have to do is donate just 5 euros , & you can enter as many times as you wish. ENTER HERE!

With the campaign subject to 2300 entries we are hoping that this recession bus

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PostedOct17

Humpty Dumpty Duathlon Oct 29th Kenmare

Posted by Bee For Battens in Events | 0 comments

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Kenmare town is fast gaining a reputation as Ireland’s fittest town. On the October weekend, Saturday Oct 29th Kenmare will host its third duathalon, a 40km Cycle and a 6km Run. It is open to everyone, individuals and relay teams. Funds raised from the event will be donated to Kenmare Underage Rugby teams and Kenmare Hospital De

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PostedSep26

Ring Of Kerry 112' Run in a Day

Posted by Bee For Battens in Events | 2 comments

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 On October 15th, Paul Gosney, a father of two, who lives in Beaufort Co Kerry will undertake the largest challenge of his life and run around the Ring of Kerry in a single day for his local charity, Bee for Battens.

The run, which is over four marathons long and totals 112 miles, will start at 6am on Saturday from Killarney Co Kerry. H

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PostedSep11

The Handsome Little Fox Picnic Night, Sept 24th

Posted by Bee For Battens in Events | 0 comments

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WHEN: Saturday Sept 24th,

WHERE: South Bank Studios , Dublin 8. (27 New Row South)

TIME: Doors from 7pm.

 

Join us for what will be a night to remember,  a night with a difference. Great craic and all for a good cause! Come, Share, Enjoy & Be Merry!


TICKETS: http://www.eventelephant.com/thehandsomelittle

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PostedSep01

A Fiver For a FOX? Your Chance to Win a Car!

Posted by Bee For Battens in Events | 0 comments

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Bee For Battens in association with VW Ireland & Tom Harvey Motors are offering you the chance to win a 2011 brand NEW VW Fox for just a fiver!

To enter all you have to do is donate just 5 euros , & you can enter as many times as you wish. ENTER HERE!

With the campaign subject to 2300 entries we are hoping that this recession bus

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PostedJul29

InteriorsDirectory.com New Fundraising Partnership

Posted by Bee For Battens in Events | 0 comments

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Bee For Battens & The InteriorsDirectory.com are delighted to announce a new fundraising initiative in support of our charity, 'Bee For Battens' (www.beeforbattens.org).


If you're a registered user of InteriorsDirectory.com (including of course, users of our free account) and you refer a friend who registers with us, (For

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PostedJun18

Charity Shoot 31st July Co. Clare

Posted by Bee For Battens in Events | 0 comments

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We are delighted to invite you to a Charity Clay Pigeon Shoot to be Held in Ruan Shooting Grounds County Clare.

The Event will be held on July 31st and will start at 12 noon. Last Entries at 5pm

 

15 Bird D7L

4 Sporting Lay Outs

Perpetual Cups

1st prizes in each event plus a High Gun Prize

 

To Register

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PostedJun18

Killarney Womens Mini Marathon Sept 10th

Posted by Bee for Battens in Events | 0 comments

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Killarney Women's Mini Marathon is a 10k event through Killarney National Park. So we are looking for people to Walk Run or Jog for Bee For Battens. A timing chip will also be available for you to register your run Time

 

The Course Route will take you through the magnificent Killarney National Park and into Killarney

Read more...

PostedJun08

Kenmare Golf Classic Friday 29th July 2011

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Kenmare Golf Club Bee For Battens Charity Golf Classic

 

This is the second Annual Golf Classic being held for Bee for Battens at the Kenmare Golf Club. This year will build on last years success and we are hoping for a large turnout again. This years event is kindly sponsored by McCarthy Sports, Main Street, Bantry

3 person tea

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PostedMay10

Life after Santa Ponsa 5th June 2011 8pm

Posted by Irene Carey in Events | 0 comments

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Starring Pakie O’ Callaghan & Frank Twomey. This hilarious comedy is coming to Kenmare to  Pobaiscoil Inbhear Sceine all in aid of Bee for Battens & Kenmare GAA.
It promises be a fantastic night!!

In this latest episode in the life of the Murphy families

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PostedMay07

Dingle Marathon September 3rd

Posted by Bee For Battens in Events | 0 comments

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Why not run Irelands Most Scenic Marathon in aid of Bee For Battens
A half and full marathon around the spectacular Dingle peninsula.

 

starting at 9am on September 3rd.

The full marathon travels 26.2 miles around the spectacular Dingle peninsula. It is a challenging run and is not to be under estimated. There are a number of

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PostedApr18

May 28th Gala Fundraiser Thurles Greyhound Stadium

Posted by Tony Heffernan in Events | 0 comments

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A Gala Fundraising evening in aid of the Bee For Battens Charity will take place on the 28th May 2011, in Thurles Greyhound Stadium, Co Tipperary.

The 11 card race event will see dogs from all over the country racing in what is going to be a great night of entertainement.

Tickets are available from Kieran Monaghan : 086 2698727,

Each

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PostedMar31

World Batten's Disease Awareness Day Ireland

Posted by Tony Heffernan in Events | 1 comments

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This Year Ireland will mark its second official World Battens Disease Awareness Day is a very special way. This years event is being held at The Kerry Way Killarney, (from 12.00 : 19:00)

Entry is free for all the family. The event will feature lots of live bands including traditional Irish jigs and reels, Kilkenny's Keltic Kats , SCUBA

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PostedMar01

Facebook Challenge

Posted by Bee For Battens in Events | 0 comments

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Bee For Battens has received a magnificant oppourtunity to raise 50,000 euro simply by asking people to join its social network Face Book group .

A wealthy Munster based business person , who wishes to remain anonymous, has pledged the large sum once the charity reaches a membership of 50000, so please spread the word and give us 10 seconds

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PostedFeb02

Paris To Geneva Cycle, 18th Sept 2011

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Paris to Geneva - 18 September 2011

Bee For Battens are pleased to announce a cycle adventure that will be sure to fulfill the expectations of amatuer and professional cyclists alike whilst rasing funds for a great cause.


 
This challenging ride covers 540km in four days to link together these two wonderful cities.

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PostedJan10

Banish The Bulge For Battens 2011

Posted by Tony Heffernan in Events | 0 comments

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Hi All

For the first time ever I am going to try and get myself some bit fit, so this year I am going to try and "Banish The Bulge For Battens"

A lot of us have no will power whatsover and I am one of those, especially when it comes to losing weight so I am using the charity as my motivation.

So many people have got and

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PostedJan09

Recycle Your Old Phone

Posted by Bee For Battens in Events | 0 comments

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Were you lucky enough to get a new Mobile Phone?  Then why not recycle your old phone for charity? Your old phone is a very valuable to us and we use all of our funding raise from recycling to fund research into Battens Disease!

WHAT TO DO!

 

Simply Send Your old Mobile Phones to:

Bee For Battens

Casteldrum

Cast

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Bee For Battens supporters will take to the skies on the June bank holiday weekend in  June 2011, to celebrate World Battens Disease Awareness  As our first World Battens Disease Awareness day parachute jumps went so well in 2010 we have been inundated with requests to repeat it this year.

Our Sky Divers will also be landing i

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PostedNov23

UCC A Summer Evening On the Quad 10th June 2011

Posted by Bee For Battens in Events | 0 comments

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The 6th annual summers eveing on the Quad will be held in aid of Bee For Battens and we are delighted to be involved with UCC, an Garda Siochana and RTE for this magnificant concert.

The exact line up for the event will be announced shortly, keep tuned and tickets will be on sale in the Near Future, please buy your tickets early to avoid di

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