The Buzz Blog - Events


Join Our Rare Diseases Study With TCD

Posted by Michelle Daly Hayes in Events | 0 comments

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The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study).

All parents and guardians are invited to take part in the study which will start on May 27th 2014 with a focus group.  The major part of the study will take place in June 2014 when a questionnaire will be released which can be completed online or by post.

Email us at or call us on 083 0044444 we would love to hear from you! 

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