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Amelia's Brain Surgery Cancelled

Posted by Bee For Battens in News | 1 comments

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The parents of a young Monaghan Girl are devastated following a last mintue decision from surgeons at the Weill Cornell hospital in New York, which has seen four year old Amelia Ryczans particpation in a medical treatment trial being suspended.


The four year old Monaghan girl travelled to the States last week with her mother Tamara, to undergo brain surgery in an attempt to stop the progression of Amelia's condition, Late Infantile Batten Disease.


The US hospital, which only extended the invitation to Amelia just 10 days ago, following 'postiive' results of a last minute blood test undertaken in a Dundalk Hospital. 

Staff at the New York facility, who undertook clarification tests of Amelias condition over the past few days , had scheduled Amelia's surgery for 12.30pm Irish time today (Feb 28th). However results of a repeat blood test received, just moments before Amelia was to undergo an 8 hour brain surgery, have resulted in the procedure being cancelled.

Bee For Battens have been informed that faciliators from the NY facility have questioned the accuracy of the results from the Irish Hospital. An investigation into the events has begun.

The Charitiy will now commence the process of rescheduling the families return flights to Ireland. 

Comments on this Article

    Robert 29/02/2012

    That's a tragic shame. So close to a possible resolution of this horrible disease process, only to be stopped at the last minute. God Speed to Amelia and her family. Hope there is a positive turn in all of this.

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