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B4B to attend NCL 2012, London

Posted by Bee For Battens in News | 0 comments

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NCL2012 is the 13th International Conference on Neuronal Ceroid Lipofuscinosis (Batten Disease). An NCL conference of this type has been held approximately every other year on alternate sides of the Atlantic.

 This is the only forum that brings together those with interests in basic science and clinical care for this group of devastating diseases. We are adding a new dimension to the NCL2012 Scientific Conference, with our co-hosts the UK Batten Disease Family Association (BDFA), by bringing together Parent Organisations, professionals and affected families to a parallel two day conference. For the first time at an NCL meeting this will include combined sessions with the scientific conference.


It will also be the first meeting of the newly formed Batten Disease International Alliance (BDIA). The  BDIA is a group of Batten Disease Parent Organisations and Research Foundations which are working together to promote awareness, a greater understanding of Batten Disease, research and support for affected families. 


Our goal is to provide a conference that will maintain the highest standards of scientific and clinical presentations with a program of oral and poster sessions. We have chosen a conference venue and organised a social program that will bring together the Science Conference, Parent Organisations and the first meeting of the BDIA  to maximise the opportunities for interactions between attendees.

Tony Heffernan of Bee for Battens, & President of the Batten Disease International Alliance shall be a co chaor of session 7. The BDIA will also be intriducing itself to the worlds Batten Disease Scientific Community for the first time

Bee for Battens is a co sponsor of the event and is offering a number of travel grants to parents & researchers involved in Batten Disease. If you would like to apply for a grant please email

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